What is Ehlers-Danlos Syndrome? How do I manage it?


Ehlers-Danlos Syndrome (EDS) is a group of 14 genetic connective tissue disorders. The root cause of this condition is the abnormal structure and function of collagen and associated proteins which work together to form connective tissue.

Common symptoms of EDS present as joint hyper mobility and instability, frequent joint dislocations, scoliosis and joint deformity, skin hyper flexibility and abnormal scarring. In more severe cases there is also weakness in specific tissues which can lead to complications like gum disease, eye disease, cardiac disorders and other organ dysfunction.

Unfortunately at this stage there is no cure for EDS, however there are many ways to manage the condition. These vary depending on the individual and how they are affected so consultation with specialists is advised. Specialised diets, strength and conditioning programs and support devices such as braces are just a few of the management strategies that can improve quality of life.

At Rural Health a Podiatrist can assist in managing the extra strain that is placed on the joints and soft tissues of the legs and feet due to altered tissue structure and hyper mobility. Ligament laxity can also mean that joints are at more risk of dislocation. Podiatrists can assess and fit orthotics, implement specific strengthening exercises to support these joints and prevent injury and longer term wear and tear.

Our Accredited Exercise Physiologists can also assist in the management of Ehlers Danlos Syndrome. Strength training is known to improve muscle tone and counteract the presence of excessive joint laxity. Exercise is also an important tool to manage associated comorbidities including fatigue, persisting pain, muscle weakness and osteoporosis. Some individuals can experience a fear of movement due to increased risk of joint dislocation or injury. Consulting an exercise professional is the best way to learn about safe exercise practices for your individual needs!

To book with a Podiatrist or Exercise Physiologist…
🖥 Book online: https://www.ruralhealthco.com.au/book-online/
📞 Phone: (02) 5926 3806

If you are in pain, or have an injury – let us help!

Booking Online is the most convenient way to lock in the clinician & time you want.